End of life care

End of life care

Dying is an inevitability we will all face. It is a topic most of us shy away from discussing, but talking about it can make all the difference to the person reaching the end of their life and those around them.

There will be a time when you have to think about the consequences of becoming seriously ill or disabled. This may be a time of ill health or as a result of a life changing event. At times like this it is important to think about what living with a serious or life limiting illness might mean to your partner, family and friends, particularly if you are unable to make decisions for yourself.

You may wish to record what your preferences and wishes for future care and treatment might be. This can include how and where you want to be cared for, as well as financial issues. Simply by letting family know your wishes, giving them peace of mind that they are acting in accordance to them can remove much of the stress from a very difficult situation.

The NHS website is full of information, help and advice to assist you in planning for the future and how to cope with a terminal illness.

What end of life care is and what it involves
Planning ahead for end of life care
Looking after your health and wellbeing

Ambitions for Palliative and End of Life Care

To view this presentation from the National Palliative and End of Life Care Partnership

Support to start positive conversations about death

Age UK and the Malnutrition Taskforce (MTF) have published a booklet and accompanying animation designed to help people start positive conversations about death with the people they care about.

National council for palliative care 'The Road Ahead'

Click here to view the National council for palliative care stategy 2015 - 2020

Planning for your future care 

The National council for palliative care has produced a guide to planning your future care.

The Dying Well Community Charter

Principles of care and support can be viewed here

What happens if my heart stops?

Do not attempt cardiopulmonary resuscitation (CPR) decision making. Information for patients, family, friends and carers.

Dying Matters

This year the Dying Matters Awareness Week focus is “Talk, Plan, Live”, aimed at encouraging you to think about what is important to you and how you would like to be cared for at the end of your life.

During the week we’re encouraging you to take five simple steps to make your end of life experience better for you and your loved ones. These are: 

• Write your will
• Record your funeral wishes
• Plan your future care and support
• Consider registering as an organ donor
• Tell your loved ones your wishes

For more information visit the dying matters website

Marie Curie

We commission a range of providers to deliver palliative and end of life care to residents of the East Riding. Marie Curie is here for people living with any terminal illness, and their families. They offer expert care, guidance and support to help them get the most from the time they have left.

Their nurses work night and day, in people’s homes across the UK, providing hands on care and vital emotional support. The hospices offer specialist round-the-clock care.

And they support people throughout their illness by giving practical information, support from trained volunteers and being there when someone wants to talk.  

Visit Marie Curie at: https://www.mariecurie.org.uk/

National Council for Palliative Care (NPCC)

The National Council for Palliative Care (NCPC) is the umbrella charity for all those involved in palliative, end of life and hospice care in England, Wales and Northern Ireland.  They believe that everyone approaching the end of life has the right to the highest quality care and support, wherever they live, and whatever their condition.  They work with government, health and social care staff and people with personal experience to improve end of life care for all.  Their Strategy 2015-2018 provides key priorities for palliative and end of life care development.  We use the NCPC resources (such as their Impact Report 2014) and strategy to inform and shape the commissioning of our palliative and end of life services in the East Riding.