Learning Disability

Transforming Care Partnership vision and plan 2016-19
Every child, young person and adult with a learning disability and/or autism has the right to the same opportunities as anyone else to live satisfying and valued lives, and to be treated with dignity and respect. We want them to have a home in their community, be able to develop and maintain relationships and get the support they need to live healthy, safe and rewarding lives.

In partnership with East Riding of Yorkshire Council, Hull CCG, Hull City Council and North East Lincolnshire CCG and Council  we have developed a joint plan Transforming Care for People with Learning Disabilities that seeks to re-shape services to meet local needs.

TCP People newsletter edition 5 is now available.

TCP People newsletter edition 4 is now available.

TCP People newsletter edition 3 is now available.

TCP People newsletter edition 2 is now available.

TCP People newsletter edition 1 is now available.

The ReSPECT Process

ReSPECT is a process that creates personalised recommendations for a person’s clinical care in a future emergency in which they are unable to make or express choices. It provides health and care professionals, responding to that emergency, with a summary of recommendations to help them to make immediate decisions about that person’s care and treatment. ReSPECT can be complementary to a wider process of advance/anticipatory care planning.  More information can be found on the ReSPECT Process website: www.respectprocess.org.uk.

An easy-read version of the guide is available here.

Review of Granville Court and Millside at Hornsea
In March/April 2015, together with East Riding of Yorkshire Council, we commissioned a review into services provided at Granville Court and Millside for people with a Learning Disability and Complex Needs. 

The Council provides the services at Millside. The Council and the Humber NHS Foundation Trust jointly provide the services at Granville Court. The full review is available hereThe review is also available in Easy Read.

A booklet by the National Forum of people with Learning Disabilities and the National Valuing Families Forum
The National Forum of people with Learning Disabilities and the National Valuing Families Forum have been working together on a new booklet called ‘Hospitals are not homes’ 

The booklet is to help people work together on the Transforming Care work and to help people check on the work that is happening in their local area. 

The Transforming Care work is about better care and support for people with learning disabilities and/or autism. The work started after the abuse of people at Winterbourne View.

We think it is really important that people with learning disabilities and people with autism and their families can be part of the work. The booklet should help people know:

  • What should be happening
  • Who to speak to
  • What questions they can ask

Please help us to let people know about the booklet by passing this information on. To view in full please click here

The Learning Disability Joint Health and Social Care Self-Assessment Framework

What is the Learning Disability Joint Health and Social Care Self-Assessment Framework?
The Joint Self- Assessment is a way of checking how good services are working for people with learning disabilities and their family members. It checks things such as:

  • Staying Healthy This includes lots of things such as getting a good service from the doctors, chemist, dentists or when going to hospital.
  • Being Safe This includes lots of things such as in their own home, in hospital or out and about where they live
  • Living Well This is about lots of things such as having a say about how services should would or being welcomed by their community

The self-assessment framework is completed annually.

How is the self-assessment framework completed?
Information is collected from a number of different organisations to give a picture of health and social care services and then submitted to Public Health England.  For more information, click here.

How will we use the self-assessment framework?
The self assessment framework represents a significant investment of time and resource. The findings each year help us to identify the quality of health and social care that people with a learning disability experience and to guide our planning in the coming year.

Where is the self-assessment framework submitted and reported?
The self-assessment framework is a national exercise and results are reported on here.

Following submission, local areas undergo a peer review with other localities in order to compare submissions and learn lessons from other areas.

Local reporting on the self-assessment framework:

  • the self-assessment framework is reported to the Local Authority and to the CCG to inform future planning
  • a presentation of the findings will be given to Service Users and Carers through locally established groups including the Learning Disability Partnership Board, the Our Say Self Advocates Group and the Carers Advisory Group.

Evidence for 2014-15

Learning Disability Self Assessment Framework 2014 (Excel spreadsheet)

Comparison of Local Demographic Data for People with Learning Disabilities 2014 (Excel spreadsheet)

Deprivation of Liberty (DOLS) Action Plan January 2015

Improving Health and Lives Learning Disabilities Observatory - Profile for East Riding of Yorkshire  2012

East Riding of Yorkshire Council Market Position Statement August 2014

Mental Capacity Act Trainers Monthly Update Number 14 July-August 2014

Mental Capacity Act Training Opportunities 2014-15

Notes of Community Team for Learning Disability Review

Evidence for 2013-14

Data Collection
The CCG (Clinical Commissioning Group) and CSU (Commissioning Support Unit) experienced significant difficulty in collecting some of the health data. Data to support a number of the indicators (eg, QOF registers in primary care, screening information and health check registers) was sought from the Local Area Team of NHS England. They were not able to provide this. A decision was then made to request the information directly from GP practices using a MIQUEST query. This information is steadily being built up but may not be complete by the submission date of 6th December 2013. We will continue to update our own self-assessment information but the figures submitted will be those available at the point of the submission date.

We also requested data on attendances at outpatient secondary care and in Accident and Emergency Units. The CSU were not able to collect data for questions 22 to 24 because outpatient and A+E activity are not coded. The CSU was also unable to access information to answer questions 27 to 32.

Submission 2013-14
The self-assessment framework was submitted on 6th December 2013 and is reported on the Public health England Improving Health and lives: Learning Disabilities Observatory site www.improvinghealthandlives.org.uk/projects/hscldsaf

Our Say - Minutes 27th June 2013

Our Say - Minutes 27th June 2013 (Graphic)

Learning Disabilities Profile

Learning Disabilities Prevalance Figures from PANSI and POPPI

Hospital Communications Book

Learning Difficulties Guidance Presentation

Learning Difficulties Health Action Planning

Patient Passport

Patient Passport Guidance