Learning Disability

Annual Health Checks

People with a learning disability often have worse health and healthcare than other people. We want everyone to have the same treatment as everyone else. Getting an Annual Health Check will help find any problems you may have, so you can get the right care.

You don’t have to be ill to have a health check. If you are aged 14 or over and have a learning disability, your doctor should offer you a health check every year or you can ask them to provide one. If they say no, ask your local community learning disability team for advice. They should be able to help you access an annual health check.

Below are links to leaflets to help you understand what to expect when going to the doctors or hospital.

Blood test communication board
Things I may see or hear in A&E
Where might the nurse want to look as part of my health check?
What happens at the doctors?
Annual Health Check at the doctors

The video below explains how Annual Health Checks work. The booklets are used by doctors in Hull and may be a little bit different in the East Riding.

Click here to visit the NHS website for more information on annual health checks.

Learning Disability Mortality (death) Review programme

People with a learning disability often have poorer physical and mental health than other people and may face barriers to accessing health and care to keep them healthy. Too many people with a learning disability are dying earlier than they should, many from things which could have been treated or prevented.

The learning from deaths of people with a learning disability (LeDeR) programme was set up as a service improvement programme to look at why people are dying and what we can do to change services locally and nationally to improve the health of people with a learning disability and reduce health inequalities. By finding out more about why people died we can understand what needs to be changed to make a difference to people’s lives.

In a LeDeR review, someone who is trained to carry out reviews, usually someone who is clinical or has a social work background, looks at the person’s life and the circumstances that led up to their death and from the information they have makes recommendations to the local commissioning system about changes that could be made locally to help improve services for other people with a learning disability locally. They look at the GP's records and social care and hospital records (if relevant) and speak to family members about the person who has died to find out more about them and their life experiences.

Visit the NHS England website for more information about the LeDeR programme.

You can find our LeDeR Annual Report on our Publications page.

Transforming Care Partnership vision and plan 2016-19

Everyone with a learning disability or autism has the right to be treated with dignity and respect. We want them to have a home in their community, good relationships and get support to live healthy, safe and rewarding lives.

In partnership with East Riding of Yorkshire Council, Hull CCG, Hull City Council and North East Lincolnshire CCG and Council we have a big plan Transforming Care for People with Learning Disabilities that seeks to make sure services meet local needs.

The partnership publishes ‘TCP People’ a newsletter featuring news and developments across the Humber that are making a difference to the lives of children, young people and adults with learning disabilities.

TCP People newsletter edition 5 is now available.

TCP People newsletter edition 4 is now available.

TCP People newsletter edition 3 is now available.

TCP People newsletter edition 2 is now available.

TCP People newsletter edition 1 is now available.

The ReSPECT Process

ReSPECT is a process that creates personalised recommendations for a person’s clinical care in a future emergency in which they are unable to make or express choices. It helps the health and care professionals responding to that emergency to make immediate decisions about that person’s care and treatment.  

An easy-read version of the guide is available here.

More information can be found on the ReSPECT Process website: www.respectprocess.org.uk.

Hospitals are not homes

The National Forum of People with Learning Disabilities and the National Valuing Families Forum have been working together on a new booklet called ‘Hospitals are not homes’.  The booklet is to help people work together on the Transforming Care work and check on the work that is happening in their local area. 

The Transforming Care work is about better care and support for people with learning disabilities and/or autism. The work started after the abuse of people at Winterbourne View.

We think it is really important that people with learning disabilities and people with autism and their families can be part of the work. The booklet should help people know:

  • What should be happening
  • Who to speak to
  • What questions they can ask

To view the full 'hospitals are not homes' document please click here. Information about our local Transforming Care partnership work is above.

Your Health Matters

Your Health Matters is a project for adults with learning disabilities which was launched in Leeds in April 2012. They work together with the NHS to make lots of information about health available in Easy Read.